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  1. Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities

    Background: People with developmental disabilities (DD) are often not included as participants in research owing to a variety of ethical and practical challenges. One major challenge is that traditional...

  2. Collaboration Strategies in Non-Traditional CBPR Partnerships: Lessons from an Academic-Community Partnership with Autistic...

    Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed...

  3. The Dynamics of Autistic-Academic Partnerships

    Traditionally, research about autistics has been developed without autistics, leading to systemic problems that reinforce stereotypes and divide communities. Some academics find the idea of autistics...

  4. Effective Partnering with the Autistic Self-Advocacy Community to Advance Intervention and Services Research

    A presentation delivered at the Ethical, Legal, and Social Implications of Autism Research Workshop, National Institutes of Health, Bethesda, MD, September 2011. The presentation focuses on the problems faced...

  5. Getting the Most out of Healthcare as an Autistic Adult

    The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), a partnership between academic researchers and members of the Autistic community, has conducted a series of studies to understand...

  6. “Respect the way I need to communicate with you”: Healthcare Experiences of Adults on the Autism Spectrum

    Our objective was to obtain an in-depth understanding of autistic adults’ experiences with healthcare and their recommendations for improving care. Our academic-community partnership used a community based...

  7. The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers

    BACKGROUND: The healthcare system is ill-equipped to meet the needs of adults on the autism spectrum.

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